Wine, Women, & Shoes: Heels for Hope
May
2

Wine, Women, & Shoes: Heels for Hope

“PAIR” WITH US AND GIVE KIDS WITH RARE & UNDIAGNOSED DISEASE THE CHANCE TO THRIVE!

Take Part Foundation helps kids with rare and undiagnosed diseases have a better shot at THRIVING. Too often the research needed to make life-altering therapies for these warriors with rare conditions dramatically lacks the funding it needs to bring the research to the finish line. Take Part helps bridge this funding gap for rare pediatric research in hopes of helping more kids THRIVE. Additionally, we provide resources for rare & undiagnosed families to better tell their story AND get access to the genetic testing needed to “diagnose” their child.

Join us for a night of wine tasting, designer shopping, tasty bites, exquisite auction items, glamorous fashion show, dream closet raffle, and so much more!

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An Evening of JOY
Nov
10

An Evening of JOY

The June Jessee Memorial Foundation (JJMF) is a nonprofit organization that provides relief to help support and care for children with devastating medically complex, neurological conditions and their families. JJMF is hosting its annual fundraiser, “An Evening of Joy”, on Friday, November 10, 2023 from 7:00 - 10:00 p.m. at The Reverie. This fun evening will feature live musical entertainment, a silent auction and high-end raffle.

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2023 Rare Disease Forum
Oct
19

2023 Rare Disease Forum

Please join us, in person or virtually, on October 19th. Registration begins at 5:30pm, with the hybrid event and panels beginning at 6:00pm.

Our United for Rare Community Leader, Kristin Lashoff, will be moderating the second panel of this event!

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St. Louis Walk to End Hydrocephalus
Oct
14

St. Louis Walk to End Hydrocephalus

ST. LOUIS WALK TO END HYDROCEPHALUS

SATURDAY, OCTOBER 14TH

The WALK to End Hydrocephalus is the Hydrocephalus Association's largest annual fundraising event, raising critical funds for research, advocacy efforts, support and education. When you take part in a WALK to End Hydrocephalus, you join more than 1 million Americans and their families who want to change the future of hydrocephalus! Come join the fun and be part of the movement. Register today!

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2023 SBSTL Walk'N'Roll for Spina Bifida
Oct
14

2023 SBSTL Walk'N'Roll for Spina Bifida

This year’s SBSTL Walk ‘N Roll will be held on Saturday, October 14th at Creve Couer Lake - Tremayne Shelter 13725 Marine Ave Maryland Heights, MO 63043. Check-in begins at 9:00am and the Walk begins at 9:45 am. The Fun/Awareness Walk will be a family-friendly, non-competitive walk. Along the way walkers will learn educational facts about Spina Bifida. After the Walk we will be having lots of fun activities, Food, Music and more. Food trucks will be setup from 9-12. Bubble Bus will be there from 10-12.

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A Toast to Gwen
Sep
9

A Toast to Gwen

“ A Toast to Gwen”, annual fundraiser for Gwendolyn’s Gifts.

Gwendolyn’s Gifts was founded in 2019. It is a 501c3 public charity inspired by our daughter, Gwendolyn. Gwendolyn’s Gifts is ran by Gwen’s parents and the help of volunteers. To date, Gwendolyn’s Gifts has donated over $200,000 and assisted a little over 1,000 local families with children fighting life threatening illnesses.

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Skate Under the Stars
Mar
7

Skate Under the Stars

Join us for a celebration of Rare Disease Day with an opportunity for Rare Disease Warriors to Skate Under the Stars at the Centene Community Ice Center outdoor rink. All are welcome to join the celebration and cheer on our skaters!

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