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Hi U4R Friends! It’s been a minute, but I hope to change that and grace your feeds a little bit more in this next season 🤍🦓

Today is #givingtuesday and I hope as a community we can all show support for our favorite rare disease organization

Excited to share our latest blog post featuring the inspiring journey of Ashley and her son Ben, who was diagnosed with LCC-Leukoencephalopathy. 🦓

🌟 Dive into her story of resilience and hope by visiting our blog page ✨

#unitedforrare #Leukoence

U4R Community leaders Maria and Kristin had the pleasure of attending the @stlchildrens foundation Table Tops spring event the other day 🌸 Love seeing all our rare friends supporting a great cause!

#raredisease #unitedforrare #stlchildrens #tablet

Join our fellow community leaders @riarambles @kmlashoff @ahp73 for an exciting event on Thursday, May 2nd at The Hawthorn from 6-9pm for Wine, Women, and Shoes: Heels for Hope! Only a few tables left so snag them while you can!

Proceeds are in sup

Happy Rare Disease Day! We are so thankful for our U4R community and today we celebrate all of you 🦓🤍

Being a parent or caregiver for someone with a rare disease comes with its own set of challenges, but it also comes with moments of immense joy,

Kicking off #rarediseaseday week with a reminder to join us for ✨Skate Under the Stars ✨ on Tuesday, March 5th to celebrate all our rare disease warriors!! No worries if you are unable to attend, you can still show your support by donating to help fu

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