NO ONE SHOULD WALK THEIR HEALTHCARE JOURNEY ALONE

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NO ONE SHOULD WALK THEIR HEALTHCARE JOURNEY ALONE 〰️

As parents and caregivers of a child living with a rare disease, we face challenges and difficult situations that can feel lonely, isolating, and scary. This community was established as a safe space for all to come together and support one another, even if your path is a little bit different than others. You are not alone and have the strength and resilience to overcome obstacles when you have a community to lean on.

We UNITE for ALL our RARE zebras.

Are you a parent or caregiver of a child living with a rare disease?

Join our St. Louis rare disease community today.

Join the U4R Community!

We would love to hear from you! If you are interested in joining our mailing list for upcoming meetings/get togethers or becoming a U4R parent resource or simply just looking to connect with another parent, please fill out the form to the right and we will get back to you as soon as possible.